Heaven Did Send Hope

Hope’s story has always been full of twists and turns. She’s been a one-in-a-million, unique little lady-unicorn right from the start. I hope everyone reading this takes a deep breath with me now. Hope is not going to make it. She is in heart failure, and that has brought about multiple system organ failure complicated with infections and TMA. She is not a re-transplant candidate. John and I have had to come face to face with the hard truth that her body has taken her as far as it could, but her time here on Earth is drawing to a close.

Our hearts are shattering into a million pieces as we share this news. We’ve lived this journey as a story shared openly with the community of people who love and support Hope so we felt it only right to share this final piece of news, even though it’s devastating. We have a short time with her to hold her, snuggle her and just make sure she knows how much we all love her. If there’s a message you’d like us to whisper in her ear while we share these final hours, leave it here and we’ll pass it along. We want her to be wrapped in not just our love, but the love of all those that have lifted her and our family up over the last two and a half years.

Once we’ve moved to the next step, we will share more details around a time we can gather to celebrate this little shining life of Hope. We have one last video of her little babbling personality to help take the sting out of this news.

Heaven sent Hope; and now she calls her Home.

64 thoughts on “Heaven Did Send Hope

  1. We love you all. We may be miles away, but our hearts and our love are with you right now.

    Hope, you are a perfect gift to the world and a beautiful miracle. We will never forget you.

    Liked by 1 person

  2. I can’t even image the pain and emotions you and John must feel. My heart goes out to you guys and tell Hope to tell the big man what courageous and loving parent she’s got. Lots is positive and uplifting vibes to all of you and your loved ones.

    Liked by 1 person

    1. Hope, you’ve brought happiness and joy to so, so many. You have touched us in remarkable ways and have shown us a side of love we didn’t know existed. All of our love to you and your incredible parents.

      Liked by 1 person

  3. Omg. As I sit here crying and without words all I can think of is how awful this is and send nothing but love and prayers your way. If there is absolutely anything you need, pls don’t hesitate to ask. You and John are my hero’s at the moment. I wish you nothing but comfort and healing. We love you all!!

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  4. Hope…you are the most special little girl I’ve ever met. Your laughter is infectious and you are just beautiful. Although our time together has been short, my world has been forever changed for having met you. I love you sweet girl…❤️ Tess and John- much love to the both of you.

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  5. Hi baby girl. I have known you since you were in your mommas belly. I have only met you personally one time. It was your first birthday! 👼🏻 I don’t have words to express how much I love you. Never have I felt a love and connection to a little princess as I have you. You have changed my life in many ways. It has been hard to watch your struggles, but it was so fun to watch your sassy self in your 2 short years. Fly high baby girl, and watch over your mom, dad, noni, and papa. Thank you for coming into our lives. See you on the other side! 💞

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  6. I haven’t stopped thinking about you guys since i left you all Thursday night. I sobbed in my truck after my shift thinking about how unfair life can be sometimes. Your family is amazing and deserves so much better. I’m heartbroken over the news about Hope. Watching you both with her these last 3 weeks has been life changing for me. You are WONDERFUL parents. Hope is one extremely loved and well taken care of little girl and I’m so sorry this is happening. I will forever remember the impact you guys and Hope made on me as a nurse and a mother. Keeping you all in my thoughts and prayers. Tell Hope that I love her and I will never forget how hard she fought.

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  7. Hope & Jon my love and prayers to both of you and especially Hope.
    Please tell her to have a wonderful time in heaven where she will not be in pain anymore!♥️🎈

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  8. Please tell Hope that all dogs and cats and lions and tigers go to heaven. There she will be the champion of all who came before her.

    Tess and John, you are loved and cherished and held in the hearts of all the people you have welcomed in Hope’s world. Godspeed to each of you.

    Liked by 1 person

  9. Love to you, John and all your extended family. This little girl has made a big impact on so many in her short life.Thank you for sharing the good and the bad with us. Hope has the most beautiful smile and always looked so happy.Im sure she knows she is loved by so many. Prayers for all in this most difficult time.

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  10. Beautiful Hope. You have shown such strength baby girl, go bless heaven as you have blessed earth. Tess and John. I have no words other than ” God bless you both”.

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  11. Just hold Hope close to your heart & let her know she will always be in your heart & your baby girl. She has touched so many of us with her story & pictures. Jesus is waiting with his arms open wide when she is ready. No more health issues & she will watch over her mommy , daddy & family that loves her always.
    Thank you for sharing her & her story with all of us & know we will be praying for you all during this very difficult time

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  12. Lots of LOVE and PRAYERS sent to you all. My heart breaks for you and I pray that the Lord delivers heavy amounts of comfort your way. You have a BEAUTIFUL baby with a story full of strength. HOPE hold onto your mom and dad super tight and keep smiling little one.

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    1. Sweet sweet Hope. Your precious smile, joyful personality, and tremendous strength in such a little body has touched the lives of so very many. Thank you for sharing your power with those who have been so fortunate to know you, if only through social media. Words cannot due justice to the impact you have had, or the sorrow that comes from knowing you’re moving on. But neither can they for the joy and restoration you will experience in the arms of Jesus. I so wish I could have met you in person. Your mom has touched my life, just as you have touched others. So I’m not surprised you take after her. I pray for peace for your loving parents, extended family, and all who know and love you. Dance on, sweet girl.

      Liked by 1 person

  13. Tess, please give Hope a big hug and kiss for me. She’s been on a rough journal and through it all still feisty and happy as ever. I will miss her and she now can join other Hopes that heaven has called home.

    Kisses and hugs to Hope, John, and you and your entire family. God bless y’all.

    Liked by 1 person

  14. Tess and John, My heart breaks for you. You have poured a lifetime’s worth of love into your little girl and been the mommy and daddy she needs. She has been a miracle from the very start – not just in medical terms, but in what her bright, precious personality has brought, the community she’s brought together and the impact she’s had on all of us. Surround little Hope with all this love.

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  15. Dear Hope – You are loved. You are so very, very loved here on Earth. And God loves you and angels love you so very much in Heaven. We will all see you in Heaven someday sweet girl. You have a wonderful Mommy and Daddy.
    Dear Tess and John – praying for you to feel moments of peace and comfort in your journey through this.

    Liked by 1 person

  16. No words can I express how truly sorry I am about Hope. She has been such a brave little soul who has touched more hearts than she will ever know. Hold Hope tight and know that we are thinking of you in this sad time. Mom and Dad…Hope is so lucky to have such amazing parents. Sending prayers and lots of love!

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  17. Jesus loves you, his precious angel, and you will be made whole again. Prayers for the peace of God that transcends all understanding to be upon all of you.

    Liked by 1 person

  18. My heart breaks for you guys and that little shining star. You are 2 of the strongest people to go through this journey, but the video of that smile shows everyone the reason you pushed through. The heavens will gain a beautiful soul that will always be watching upon you. Prayers be with you guys through this journey.

    Liked by 1 person

  19. Hope you are one little special girl that touched my heart through your mom’s post. May the eternal light shine upon you.
    John and Tess you are in my thoughts and prayers even more. I’m so sorry for your loss.

    Liked by 1 person

  20. Sweet baby Hope you have lived, laughed, loved and you have been loved. Go now and be with God where you will have no pain and no sickness. You will be missed but we will join you there one day for the best celebration ever. Until Then- I love you Kathy

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  21. Sweet Baby Girl Hope,

    Nothing made me have a better day than knowing I would get to see you in the morning. You touched my heart in a way that brought purpose to my steps. My time with you was so brief but your smile will forever remind me of what it means to give your best to the best.
    Thank you. Thank you Hope for bringing new days with unconditional love no matter the current condition. You are so special, you are so loved, and its time now to have peace and joy away from all the alarms and tubes and cords. It’s your time now to rest and play abundantly and prosper. You are so loved and your Mom and Dad did everything right. Everything they did, they did for you and I was an eye witness to their sacrifices and their love for you. Its so hard to say goodbye but it’s temporary. Remember Hope – family is forever and those bonds cannot be broken.

    AJ

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  22. We are devastated to hear this. Tess and John, we love you both and have admired your strength in this enduring struggle. Please tell your little angel that all the Page’s love her and she is truly adored by Kaelyn and Owen. Please tell her when we think of her laughter and cute baby face, we smile. We are here for you in any way you need and know we are so so sorry. We are praying for you and you are in are thoughts always! Love, Kelly and Steve

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  23. Precious Hope. Your mommy and daddy love you always and forever! Everyone who has seen their love and strength is all because of Hope. That’s you! Heaven is a beautiful place and your mom and dad know that.

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  24. A little warrior on earth , a victorious angel will be sent back to heaven. Thank you Hope for shinning more light in such short time as you graced so many with an amazing journey that many on earth learned the beauty of much love due to your short presence . My whisper to you is “ Fly high in HEAVEN as you did on Earth”.

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  25. There are no words. I’m saddened by the news but know your new heavenly home will not be filled with tests and needles and tubes and pain and you will be surrounded by so many that have loved you from afar these past couple of years. Please watch over us from your heavenly heights and we will continue to think of you and keep you in our prayers. You always gave us HOPE with your infectious smile and those beautiful big eyes and your fighting spirit. Thank your Mommy and Daddy for sharing you with us. You will be missed and you are so loved.

    Liked by 1 person

  26. Sweet baby girl, I have followed your story through your beautiful grandmother Anne. You have fought so many battles in your short time here you left us in awe of you. I wish and pray for this time to be full of comfort, peace, and most importantly love.

    Liked by 1 person

  27. Hope, you are a little angel that came to heart to bring faith and sense of community to people. Your little heart could not keep you here but you will be in everyone’s hearts forever.

    Liked by 1 person

  28. Hope, you are an amazing soul that gave so many people far and wide a deeper understanding of love and courage.
    We love you Hope, now and forever ❤️

    Liked by 1 person

  29. Hope, thank you for teaching us what courage and grace means. The gift of your life, although unfairly cut short, will be cherished and loved for eternity. You are loved, always.

    Liked by 1 person

  30. Tess and John,
    I borrowed the following quote.

    you know that place between sleep & awake,
    the place where you can still remember
    DREAMING? that’s where HOPE will
    always love you
    that’s where HOPE will be
    WAITING.

    Lori

    Liked by 1 person

  31. Hope, I’ve followed your journey from the beginning. You have taught me how to love what heaven has given us as much as we can, for as long as we can. Your strength has been incredible. Thank you to you and your parents for showing us gracefully what love is.With a breaking heart I tell you, I love you sweet angel. God speed ❤

    Liked by 1 person

  32. My name is Bryson. I lost my daddy to this diseases 5 years ago. My message to baby Hope is this…. I prayed just now that God would send my daddy to greet you at heavens doors. He was a great daddy. He loved kids. He will play with you, act silly with you. He will chase you and let you chase him. He will laugh at you when you tell him jokes that aren’t that good and will pick on you and tell you funny things too. I prayed that God will allow my daddy to keep you with him until you see your own mom and dad again one dad. I promise, he’s a really good daddy. You’ll have lots of fun with him. I pray your journey home is as soft and sweet as you are.
    Love and prayers,
    Bryson Burks
    (I use my moms fb, I’m 15. I lost my dad when I was 10)

    Liked by 1 person

  33. Hope, When word got out that “Hope was in the building” I would run down the office halls to find you! Your beautiful smile, adorable cheeks and, of course, your spunk, would bring a smile to my face the rest of the day. You have blessed us all in so many ways! You are a special angel that will stay in our hearts forever.

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  34. When someone speaks in a whisper, you have to get very close to hear. In fact, you have to put your ear near the person’s mouth. We lean toward a whisper, and that’s what God wants. God whispers in her ear, “you are my beloved” and He celebrates Hope’s gift of time with you, and to her heavenly home He has made for her. He’s whispering to you too Tess! “Well done, good and faithful servant!”
    I’m praying thanks for those loving moments you have had, and for the eternity of moments yet to come when you’re together again. I’ll continue in prayer for you Tess — and your little family. Sincerely!

    Liked by 1 person

  35. We have prayed for you and your mommy and daddy, we never gave up on you. You were a strong little girl and a fighter, but, we know you are tired and need some rest and peace. God will be waiting with open arms to welcome you and heal you in heaven. God bless you as you gain your little wings♥️

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  36. Tess and John, May God give you strength to carry forward in this time of unimaginable pain. May you find some semblance of peace and comfort in the end of suffering . Hope’s light will shine on.

    Liked by 1 person

  37. We send you our love and heartfelt prayers that you and John may find the strength you need to get through each day.
    Hope will live in your heart and the hearts of so many infinitely.
    Leta, Joe, Paige & Jess

    Liked by 1 person

  38. Hope, indeed you have left your mark on all of us. Like a prism, light shines through you and we are graced by the emanating rainbow. Peace be with you.

    Liked by 1 person

  39. Hope you are a brave little girl and a fighter until the end. You have touched so many lives in unbelievable ways. Heaven will be fortunate to have you as a sweet little angel. Lots of love and prayers for you sweet baby girl! We will all be here for your mommy and daddy! God bless!

    Liked by 1 person

  40. Hope, Tess, John, Your life has touched our family more than you may know, and wish so badly that we could do something to ease the emotions you’re going through. Hope, you’re a ray of sunshine. You and your parents will forever be surrounded by people that love them and that will never forget you. ♥️

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  41. Tess and John,

    God gave you Hope for a reason and now He needs her back. You have been the best earthly parents she could have, but Hope has always belonged to her Heavenly Father. Your courage and love have been a beacon for all in your orbit. God has you – lean into Him.

    With all our love,

    Nancy and Allan Morris

    Liked by 1 person

  42. God Bless your little (but so BIG) soul Hope. You have been such a brave fighter. You have been an Angel on Earth. Your Mommy, Daddy, and everyone else loves you very, very much!

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  43. My hear absolutely breaks for you Tess. There are no words, but please know I am here for you, no matter what you need.

    Sending you love and prayers,
    Shawnee

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  44. Heaven gives is hardest battles to its strongest warriors. And you, Hope, are a bad ass, just like your parents. Love you Tessa.

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