Celebrating Hope

Eleanor Hope Anne Sansbury passed away peacefully in her loving parents’ arms on the morning of September 16, 2019. She bravely fought a life-long battle with Congenital Heart Disease and a subsequent Heart Transplant just three months after her birth on July 25, 2017. Treasured daughter of John and Tess Sansbury. Beloved granddaughter of Dr. […]

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Heaven Did Send Hope

Hope’s story has always been full of twists and turns. She’s been a one-in-a-million, unique little lady-unicorn right from the start. I hope everyone reading this takes a deep breath with me now. Hope is not going to make it. She is in heart failure, and that has brought about multiple system organ failure complicated […]

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Still Seeking Answers

We came in To the ER on July 28th with what we thought was a fever and potential rejection. Since then, we’ve chased more questions and found each one met with more confusion. John and I know there are so many people who love our family and want an update, but this has been a […]

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This Week Was a Poop Sandwich

Let’s pick up where we left off in our last update: We were admitted for a fever and infection last week, putting the viability of her procedure in question.  We were able to come home late Friday and we spent the weekend resting and recovering from a lovely two-day stay at Hotel Children’s last week. […]

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Attack of the Virus Vol. 3

Hope has had a complicated few weeks. She has been fighting off infections and we received a new diagnosis because, hey, we don’t have enough to deal with already, right? Let’s start with the infections. Hope continues to struggle with a condition called neutropenia, (click link for more info – noo-troe-PEE-nee-uh – is an abnormally […]

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Happy Heart-Anniversary

The last 24 hours have been an emotional ride down memory lane. Right about this time, one year ago we were walking into this scene – seeing our little girl for the first time in over 13 hours. I’ll never forget this image. We weren’t sure we were in the right room; this little girl […]

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