There is no Normal

When the transplant team told us to forget the notion of normal, we really couldn’t comprehend the way this simple statement would impact every part of our lives.  Forget normal bonding with your child.  Forget normal stage progression for your child.  Forget normal level of interaction with a medical team for your child.  Even something […]

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Living On the Edge

Hope has had a turbulent August and we can’t tell you how glad we are to turn over a new leaf and see fall come, and not for the PSLs you lunatics (that’s Pumpkin Spice Lattes for the unfamiliar). She’s never really gotten back to 100% after her Hand, Food & Mouth encounter – just […]

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Attack of the Virus Vol. 2

We are starting to think Hope doesn’t want to go to the lake. It seems that she gets stricken with some virus every time we try to go down. We had planned on spending a whole week at the lake relaxing and boating with our babe, but Miss Hope decided that was not going to […]

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Celebrating a Magical Year

Has it really been a whole year? John and I can’t believe it! We’ve only been home with her since January so we don’t feel ready for her to turn one and yet we couldn’t be more excited to have made it to this Magical Milestone! We feel like we really share this day with […]

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Attack of the Virus vol. 1

We spent the better part of the winter hibernating with Hope in an attempt to delay her first battle with illness with a suppressed immune system.  It largely worked, outside of our hug-flu scare.  We spent a wonderful weekend at the lake with family.  We were so careful, but despite our best efforts Hope managed […]

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Joyful Expectation

Spring is full of firsts: first hike, first lake trip, first St. Patty’s day, first Easter – all fun times and lots of missed photo ops!  We had some pretty cute St. Patty’s day outfits picked out, but Hope got a little excited and had a blowout before the camera could snap up a shot […]

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When Do We Sleep Again?

My, oh my, has it been a while since our last update! You all probably (accurately) predicted it would be so. First time parents taking home their medically fragile baby: cue the almost predictable flurry of days that blur together in a haze of exhaustion, sleep deprivation, anxiety, visits to the hospital, calls to the […]

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