Ho, Ho, Hope!

The last week and a half have been quite a roller coaster with Hope. Our last glimmer of hope of coming home for Christmas was dashed as Hope continued to have runs of a-tachycardia, which she needed to be treated with an IV anti-arrhythmia med that can only be administered in the CICU. So we […]

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Getting to the Step Down: Take Two

It was not all that long after transplant that the CICU started throwing the words “step-down unit” around sending both John and Hope into a panic. Hope went from possibly going to the step-down unit last Monday to buying herself another week in the CICU with atrial tachycardia. We progressed through beta-blockers (esmelol, propranolol) and […]

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P.S. Forever Thankful

On a more serious note, I’m sure many of you are craving, just like we are, more details about the origin of Hope’s donor heart. We are given extremely little information about the donor out of respect for the grieving family. We don’t know how old the child was, the sex of the child, the […]

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No More Achy Breaky Heart

Hope finally ditched her achy, breaky heart in the wee hours of Monday morning. The surgery team literally tossed her old heart in a bucket and sent it down to pathology where it will be studied and go in a library of other baby hearts – kind of creepy, but cool! Her anesthesiologist told us […]

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We Got A Heart!

Update 7:33 am Hope has successfully pulled through the transplant operation. She’s still getting wrapped up to leave the OR, so it will probably be a few hours before we can see her, but after one long night, this is our first victory! Now, prayer & good vibes warriors, we just have to ask for […]

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Much Deserved R ‘n R

Hope had a quiet day getting some much deserved R ‘n R while Mom worked and Dad hit the books. But not before we donned our costumes to match Little Hope’s Tin Man from Sunday. Hope is going to spend a few days still intubated and heavily sedated to help aid her recovery so we […]

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Glenn Updates

7:00 pm Update We finally got to see her!  Surgery went well.  Considering her rocky course leading up to the Glenn, they are going to proceed with more caution than typical to let Hope show us how much support she needs in a safe way.  They may extubate her in the next few days, but […]

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