Update 7:33 am Hope has successfully pulled through the transplant operation. She’s still getting wrapped up to leave the OR, so it will probably be a few hours before we can see her, but after one long night, this is our first victory! Now, prayer & good vibes warriors, we just have to ask for […]Read more "We Got A Heart!"
Hope had a quiet day getting some much deserved R ‘n R while Mom worked and Dad hit the books. But not before we donned our costumes to match Little Hope’s Tin Man from Sunday. Hope is going to spend a few days still intubated and heavily sedated to help aid her recovery so we […]Read more "Much Deserved R ‘n R"
7:00 pm Update We finally got to see her! Surgery went well. Considering her rocky course leading up to the Glenn, they are going to proceed with more caution than typical to let Hope show us how much support she needs in a safe way. They may extubate her in the next few days, but […]Read more "Glenn Updates"
Hope’s resting up for her big day tomorrow. Mom & Dad dressed her up as the Tin Man for pre-Halloween pictures, since the day of Halloween she’ll be a little immobile due to her post-op jewelry (chest tubes, arterial lines, etc). So we figured better a little early than miss the Tin Man altogether! Dad […]Read more "If I Only Had a Heart"
In honor of Hope’s uni-ventricular cardiac plumbing we dressed her up as a unicorn to celebrate her 3 month birthday!! It’s a big mark because, until transplant came along as an alternative path, all we used to think of was just getting her to that 3 months and 5 kilos mark. Which reminds me – […]Read more "Unicorns Rule"
As always, Hope likes to throw curveballs to…well everyone. I honestly think she may have become a favorite among the team here because there’s nothing a doctor doesn’t like more than a challenge and this girl is a challenge for sure. For perspective, Hope has had probably close to 2 dozen echoes if you count […]Read more "The Trouble With The Curve"
Hope keeps us on our toes. So much so that we’ve found it challenging to get blog posts written often enough. I know many of you are checking the blog regularly and I can promise you that I hope to write more frequently than you’ve seen over the last few weeks. This post might be […]Read more "The Great Debate and Other News of Hope"