This week has been rough on Little Hope. Really rough. It started with such potential. We were full of nervous excitement as we watched Hope on Sunday, curious if she would give us a reason she needed to stay in the CICU. Sunday night she gave us the first inkling of what the next few […]Read more "Over the River and Through The Woods To The CICU We Go!"
It was not all that long after transplant that the CICU started throwing the words “step-down unit” around sending both John and Hope into a panic. Hope went from possibly going to the step-down unit last Monday to buying herself another week in the CICU with atrial tachycardia. We progressed through beta-blockers (esmelol, propranolol) and […]Read more "Getting to the Step Down: Take Two"
All you have to do is say the Q-word (quiet) and Hope is almost sure to respond with a new ride on the Heart Rollercoaster. As much as we hoped to have a quiet weekend, Hope had something different in mind for the holiday week. On Monday she was supposed to go in for her […]Read more "I got 99 problems, but a PIC aint one"
On a more serious note, I’m sure many of you are craving, just like we are, more details about the origin of Hope’s donor heart. We are given extremely little information about the donor out of respect for the grieving family. We don’t know how old the child was, the sex of the child, the […]Read more "P.S. Forever Thankful"
Hope finally ditched her achy, breaky heart in the wee hours of Monday morning. The surgery team literally tossed her old heart in a bucket and sent it down to pathology where it will be studied and go in a library of other baby hearts – kind of creepy, but cool! Her anesthesiologist told us […]Read more "No More Achy Breaky Heart"
Update 7:33 am Hope has successfully pulled through the transplant operation. She’s still getting wrapped up to leave the OR, so it will probably be a few hours before we can see her, but after one long night, this is our first victory! Now, prayer & good vibes warriors, we just have to ask for […]Read more "We Got A Heart!"
Hope had a quiet day getting some much deserved R ‘n R while Mom worked and Dad hit the books. But not before we donned our costumes to match Little Hope’s Tin Man from Sunday. Hope is going to spend a few days still intubated and heavily sedated to help aid her recovery so we […]Read more "Much Deserved R ‘n R"