Ain’t Nothing Like the Real Thing

Today’s post is going to be a double serving of the real thing. Recently, two things came my way that have moved me to share a different kind of post today – something that is less of an update on Hope and more of a raw peek behind the Sansbury-curtain on what this journey has […]

ain’t nuthin but a g- tube

Hope needs this onesie like now. ain’t nuthin’ but a g-tube baaaby. No – we literally did nothing but get this g-tube this week 🙂 We spent every day at the hospital without intending to do so, but the payoff is huge progress. We made it in for the surgery and it went off without […]

Just When I Thought I Was Out…

They pull me back in!!!! Take a good look at this yellow tube on my face because after my surgery tomorrow these sweet cheeks will be naked and tape + tube – free. We are indeed heading back to the hospital for a short in-patient stay. For the last few months the Transplant Team has […]

This Must Be A Dream

Wow. We came home! Can you believe it? I’m not sure John and I believe it yet! The last few days have been exciting, exhausting, surreal and blissful. We arrived home late Tuesday evening and it looked like a bomb exploded in our house as we brought everything in from the hospital. It was then […]

We are Home!

That. Is. All. Ragnus – we miss you already!!!!

The Wrong Kind of One-percenters

There’s a secret part of all of us, and not so secret for some, that wishes they were part of that elite one-percenter club. Those ~34k affluent families enjoying a luxurious lifestyle. We are not that kind of one-percenter (to the shock of no one who knows us). We’re in an even MORE exclusive club […]

Ho, Ho, Hope!

The last week and a half have been quite a roller coaster with Hope. Our last glimmer of hope of coming home for Christmas was dashed as Hope continued to have runs of a-tachycardia, which she needed to be treated with an IV anti-arrhythmia med that can only be administered in the CICU. So we […]

Heaven Sent Hope