This Must Be A Dream

Wow. We came home! Can you believe it? I’m not sure John and I believe it yet! The last few days have been exciting, exhausting, surreal and blissful. We arrived home late Tuesday evening and it looked like a bomb exploded in our house as we brought everything in from the hospital. It was then […]

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Ho, Ho, Hope!

The last week and a half have been quite a roller coaster with Hope. Our last glimmer of hope of coming home for Christmas was dashed as Hope continued to have runs of a-tachycardia, which she needed to be treated with an IV anti-arrhythmia med that can only be administered in the CICU. So we […]

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Getting to the Step Down: Take Two

It was not all that long after transplant that the CICU started throwing the words “step-down unit” around sending both John and Hope into a panic. Hope went from possibly going to the step-down unit last Monday to buying herself another week in the CICU with atrial tachycardia. We progressed through beta-blockers (esmelol, propranolol) and […]

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