They pull me back in!!!! Take a good look at this yellow tube on my face because after my surgery tomorrow these sweet cheeks will be naked and tape + tube – free. We are indeed heading back to the hospital for a short in-patient stay. For the last few months the Transplant Team has […]
Read more "Just When I Thought I Was Out…"Wow. We came home! Can you believe it? I’m not sure John and I believe it yet! The last few days have been exciting, exhausting, surreal and blissful. We arrived home late Tuesday evening and it looked like a bomb exploded in our house as we brought everything in from the hospital. It was then […]
Read more "This Must Be A Dream"That. Is. All. Ragnus – we miss you already!!!!
Read more "We are Home!"There’s a secret part of all of us, and not so secret for some, that wishes they were part of that elite one-percenter club. Those ~34k affluent families enjoying a luxurious lifestyle. We are not that kind of one-percenter (to the shock of no one who knows us). We’re in an even MORE exclusive club […]
Read more "The Wrong Kind of One-percenters"The last week and a half have been quite a roller coaster with Hope. Our last glimmer of hope of coming home for Christmas was dashed as Hope continued to have runs of a-tachycardia, which she needed to be treated with an IV anti-arrhythmia med that can only be administered in the CICU. So we […]
Read more "Ho, Ho, Hope!"This week has been rough on Little Hope. Really rough. It started with such potential. We were full of nervous excitement as we watched Hope on Sunday, curious if she would give us a reason she needed to stay in the CICU. Sunday night she gave us the first inkling of what the next few […]
Read more "Over the River and Through The Woods To The CICU We Go!"It was not all that long after transplant that the CICU started throwing the words “step-down unit” around sending both John and Hope into a panic. Hope went from possibly going to the step-down unit last Monday to buying herself another week in the CICU with atrial tachycardia. We progressed through beta-blockers (esmelol, propranolol) and […]
Read more "Getting to the Step Down: Take Two"