Attack of the Virus vol. 1

We spent the better part of the winter hibernating with Hope in an attempt to delay her first battle with illness with a suppressed immune system.  It largely worked, outside of our hug-flu scare.  We spent a wonderful weekend at the lake with family.  We were so careful, but despite our best efforts Hope managed […]

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Joyful Expectation

Spring is full of firsts: first hike, first lake trip, first St. Patty’s day, first Easter – all fun times and lots of missed photo ops!  We had some pretty cute St. Patty’s day outfits picked out, but Hope got a little excited and had a blowout before the camera could snap up a shot […]

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When Do We Sleep Again?

My, oh my, has it been a while since our last update! You all probably (accurately) predicted it would be so. First time parents taking home their medically fragile baby: cue the almost predictable flurry of days that blur together in a haze of exhaustion, sleep deprivation, anxiety, visits to the hospital, calls to the […]

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ain’t nuthin but a g- tube

Hope needs this onesie like now. ain’t nuthin’ but a g-tube baaaby. No – we literally did nothing but get this g-tube this week 🙂 We spent every day at the hospital without intending to do so, but the payoff is huge progress.  We made it in for the surgery and it went off without […]

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This Must Be A Dream

Wow. We came home! Can you believe it? I’m not sure John and I believe it yet! The last few days have been exciting, exhausting, surreal and blissful. We arrived home late Tuesday evening and it looked like a bomb exploded in our house as we brought everything in from the hospital. It was then […]

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Ho, Ho, Hope!

The last week and a half have been quite a roller coaster with Hope. Our last glimmer of hope of coming home for Christmas was dashed as Hope continued to have runs of a-tachycardia, which she needed to be treated with an IV anti-arrhythmia med that can only be administered in the CICU. So we […]

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