We spent the better part of the winter hibernating with Hope in an attempt to delay her first battle with illness with a suppressed immune system. It largely worked, outside of our hug-flu scare. We spent a wonderful weekend at the lake with family. We were so careful, but despite our best efforts Hope managed […]Read more "Attack of the Virus vol. 1"
Spring is full of firsts: first hike, first lake trip, first St. Patty’s day, first Easter – all fun times and lots of missed photo ops! We had some pretty cute St. Patty’s day outfits picked out, but Hope got a little excited and had a blowout before the camera could snap up a shot […]Read more "Joyful Expectation"
My, oh my, has it been a while since our last update! You all probably (accurately) predicted it would be so. First time parents taking home their medically fragile baby: cue the almost predictable flurry of days that blur together in a haze of exhaustion, sleep deprivation, anxiety, visits to the hospital, calls to the […]Read more "When Do We Sleep Again?"
Today’s post is going to be a double serving of the real thing. Recently, two things came my way that have moved me to share a different kind of post today – something that is less of an update on Hope and more of a raw peek behind the Sansbury-curtain on what this journey has […]Read more "Ain’t Nothing Like the Real Thing"
Hope needs this onesie like now. ain’t nuthin’ but a g-tube baaaby. No – we literally did nothing but get this g-tube this week 🙂 We spent every day at the hospital without intending to do so, but the payoff is huge progress. We made it in for the surgery and it went off without […]Read more "ain’t nuthin but a g- tube"
They pull me back in!!!! Take a good look at this yellow tube on my face because after my surgery tomorrow these sweet cheeks will be naked and tape + tube – free. We are indeed heading back to the hospital for a short in-patient stay. For the last few months the Transplant Team has […]Read more "Just When I Thought I Was Out…"
Wow. We came home! Can you believe it? I’m not sure John and I believe it yet! The last few days have been exciting, exhausting, surreal and blissful. We arrived home late Tuesday evening and it looked like a bomb exploded in our house as we brought everything in from the hospital. It was then […]Read more "This Must Be A Dream"
That. Is. All. Ragnus – we miss you already!!!!Read more "We are Home!"
There’s a secret part of all of us, and not so secret for some, that wishes they were part of that elite one-percenter club. Those ~34k affluent families enjoying a luxurious lifestyle. We are not that kind of one-percenter (to the shock of no one who knows us). We’re in an even MORE exclusive club […]Read more "The Wrong Kind of One-percenters"
The last week and a half have been quite a roller coaster with Hope. Our last glimmer of hope of coming home for Christmas was dashed as Hope continued to have runs of a-tachycardia, which she needed to be treated with an IV anti-arrhythmia med that can only be administered in the CICU. So we […]Read more "Ho, Ho, Hope!"