Glenn Updates

7:00 pm Update

We finally got to see her!  Surgery went well.  Considering her rocky course leading up to the Glenn, they are going to proceed with more caution than typical to let Hope show us how much support she needs in a safe way.  They may extubate her in the next few days, but they also said that if she seems like she needs it, they’ll just keep it around for a few days more until she just doesn’t need it anymore.  Looks like Hope is driving the bus and will begin showing us her plan 🙂 

3:00 pm Update

She is all sewn up and working her way through the wrap up in the OR then up to her new room. The surgery went as well as can be expected. Her pre-op echo showed Hope’s function back down to the depressed levels, which didn’t surprise John and I – we never thought that last echo was an indication of where her function would stay. All in all, the Surgeon said he was very happy with Hope’s procedure and she had no road bumps. She has slightly elevated pressures in her lungs and her overall blood pressure is a little high, but we expect things to settle out over the next few days. We should get to see her again in a few hours.

12:00 pm Update

She is on bypass now. I just realized that we never explained the what the Glenn surgery is and what steps they take. The primary goal of this surgery is to begin the reroute of pulmonary blood flow away from the right ventricle to ease the burden. With no left ventricle, the right side is seriously overloaded, doing its job and pumping to the body and pumping about 2.1x too much to the lungs. You have an inferior and superior vena cava. The inferior routes oxygen depleted blood to your right ventricle from your body and the superior is basically the upper body and brain. The Glenn will remove the shunt that was placed during the Norwood and disconnect the pulmonary vein from the heart. The superior vena Cana will then be attached to the right pulmonary vein, creating a system that completely removes the right ventricle from having to pump the SVC blood to the lungs. This should remove about ~ 40% of the workload her heart has had to do since her Norwood. The team called and she’s off bypass as of 1:30 pm. They need to wrap up and then we’ll be able to meet with the doctors for more questions and information.

10:15 am Update

They officially started the surgery at 10:15.

7:00 am

They took Hope right on time this morning. We’ll post updates as she progresses through the surgery. She looked just perfect as they wheeled her away into the operating area.

Wish us luck and say a little prayer for Hope.

24 thoughts on “Glenn Updates

  1. There is a continuous stream of prayer flowing into a wide and mighty river that your little fighter goes out stronger than ever. I am also praying for your peace and you endure the waiting.

    Liked by 1 person

  2. She looks so good, considering all she’s been through! And she looks relieved to see her mama again 🙂 Praying for a peaceful night for all of you.

    Liked by 1 person

  3. So glad things to be going in the right direction! You can just tell she’s a fighter!! And agree with Sharon, she sure looks happy to see you! Love you guys…will be anxious to hear tomorrow’s update.

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  4. Tess, if there ever was the most empowering picture of a Mother’s love, it would be that first picture (all of them, but that first was one defines everything about what love is). I’m pretty certain if I looked up the word “fighter” in the dictionary it would have 100 pictures of sweet little Hope under it! Stay strong (you too John) Hope needs you! Sending all of our love to all 3 of you…..

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  5. Another big step for that little beauty! Thank you for the updates — thinking of you all each day but especially today.

    The photo of you reconnecting after the procedure is just beautiful….that touch on the hand and head with a gaze is life changing!!

    Liked by 1 person

  6. God Bless You Hope – You are such a fighter! Keep up the fight baby girl. Great pictures of Hope seeing that her Mommy (and Daddy) are right there with her.

    Liked by 1 person

  7. It seems like some kind of goals are being met & maybe could feel like steps forward.
    How can she still be So cute after heart surgery?? Love to all of you!

    Liked by 1 person

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